A good letter to the National Alzheimer's Association Leadership. Many of us share these concerns.
Dear Alzheimer's Association Leadership
Saturday, August 27, 2011
59 Year Old Living with Affects of Alzheimer's -- Treat Me Right
We went out to dinner last night with our neighbor, Carmen. She told me about this lady from seeing it on TV. And then today I found it on Alzheimer's Reading Room.
I am the same age.
Sunday, July 17, 2011
Caregiver crime growing trend | ajc.com
Caregiver crime growing trend | ajc.com
"I wasn’t a tenant anymore,” Hill testified recently. “I’d become a hostage.”Hill, 59, said he was trapped in a windowless basement room in a DeKalb County home for almost six months ending in March 2010, sharing the room with a mentally disabled stranger. For breakfast, they got Ramen noodles in Country Crock margarine containers; for dinner, two bologna sandwiches. They used 5-gallon paint buckets for toilets."
Saturday, June 25, 2011
Peter Falk Dies, He had Alzheimer's Disease
I loved "Columbo". Never missed an episode. I love it when Peter Falk would start to walk away from a suspect he was interviewing and then walk back to
the person and say, One more question." Along with millions of others I hope that a cure can be found for this horrible disease. And it's SO important that
folks diagnosed with Alzheimer's get into a clinical trial because that is where the cure will come from. And without people stepping up to the plate to get into
a clinical trial there will never be a cure.
Wednesday, June 22, 2011
Glen Campbell: I Have Alzheimer's
Keep Glen Campbell and his family in your prayers. I felt sad when I heard the news today. I loved his music and always thought he was a nice person.
I wish him well on his farewell tour and hope he comes to South Florida so I can see him perform.
Today,after putting it off I went to the Human Resources Department at work and requested the papers for Medical Disability. Retiring makes me nervous,
but I can't keep on working. Everything is so overwhelming and I can't keep track of things like I used to.
Tuesday, June 21, 2011
Mystery Ingredient in Coffee Boosts Protection Against Alzheimer's Disease
We are not saying that daily moderate coffee consumption will completely protect people from getting Alzheimer's disease,"
Dr. Cao said. "However, we do believe that moderate coffee consumption can appreciably reduce your risk of this dreaded
disease or delay its onset"
Infusion Treatment #1
After being in the Wyeth clinical trial of Bapineuzumab, today was my first day in the final part of the trial. I'm getting the real vaccine and even checked to make sure the IV bag had
Bapineuzumab written on it. It made for a long day-six and a half hours. But I had my laptop and Larry had his and we had a TV in the treatment room so it wasn't so bad. I always have
brain scans halfway between the infusions to make sure my brain is not swelling which used
to be a problem with Bapineuzumab but is not anymore after decreasing the amount of the
chemical.
I wish everybody would get into a clinical trial. Without people enrolling in the trials, research and finding a cure slows down.
http://www.addthis.com/bookmark.php?v=250&pub=mperton
This is exciting. A blood test to diagnose Alzheimer's Disease is coming soon!
Today I go for my Bap vaccine infusion at Brain Matters.
http://www.addthis.com/bookmark.php?v=250&pub=mperton
Tuesday, June 14, 2011
Difficulties in Diagnosing Dementia by Type
"It is true that we know of around 70 different types of dementia, but these findings are shocking. We believed more patients were diagnosed correctly when we began the study".
Sunday, June 12, 2011
Monday, May 30, 2011
Retire Now or Wait?
For the past week I've been torn between going out on a medical retirement and waiting until the
end of December when I can go out on a full retirement. I'm extremely anxious at work and having increased problems with being organized at work and forgetting things. What to do? I will
discuss it with one of the social workers at the Alzheimer's Association.
Living with Alzhiemers': Alzheimer's Disease: Treatment - Risk Factors - Pr...
Living with Alzhiemers': Alzheimer's Disease: Treatment - Risk Factors - Pr...: "Alzheimer's Disease: Treatment - Risk Factors - Prevention - Symptoms - Caregiving - Resources - Questions and Answers - Publications - News..."
Sunday, May 29, 2011
Rare diseases on the Planet: A Colombian Family Could be The Key to Curing Alzh...
Rare diseases on the Planet: A Colombian Family Could be The Key to Curing Alzh...: "A family in Colombia, who has early Alzheimer's, hereditary, participates in a trial of new drugs that doctors hope could lead to a cure f..."
Alz News: fast and faster
I wanted to post this because I have some things in common with Jeff. #1 I lived in Houston for 17 1/2 years before moving to West Palm Beach. I loved Houston and miss it. #2 I have a problem with spelling. My B.A. is in English. I never used to have a problem with spelling. #3 I can't do math. Even simple tasks are difficult and I often have to get help.
This is what Jeff had to say on his blog:
Alz News: fast and faster: "It was world Alz day and letters were being sent to members of congress pleading for more help with Alzheimers suffering from this horable d..."
Saturday, May 28, 2011
A Possible Vaccine for Alzheimer’s (Bapineuzumab)
This is the study I have been in for the past 18 months. In 4 weeks I will begin being being infused with the actual bapineuzumap vaccine.
It was reported a few dags ago, in both the U.K.’s Telegraph asnd in India’Indian Express, that there could possibly be a vaccine for Alzheimer’s within the next two years. This vaccine is being shown effective in stopping the progress of Alzheimer’s and even in reversing brain damage.
A touching story from Coastal Visions Magazine: NEW PURPOSE
Recently, Coastal Visions Magazine suffered the loss of our photographer and photo editor Cynthia Fitzgerald, my wife of 35 years. March 22, 2011 she passed away from complications associated with Alzheimer's disease. She was 56. When she was diagnosed with AD in 2007, I made the difficult decision to care for her through the most difficult time of her life.
Read More: http://www.coastalvisionsmagazine.com/featured.htm
Sunday, May 22, 2011
Sobering Statistics about Alzheimer's Disease
Sobering Statistics about Alzheimer's Disease
Thanks to Bob DeMarco at Alzheimer's Reading Room which should be considered important reading for those diagnosed with Alzheimer's Disease and
their caregivers.
Friday, May 20, 2011
Climbing Mt. Everest for Alzheimer's
Alan's mom has Alzheimer's. He is climbing Mount Everest to raise a million dollars for research.
Learn more about Alan:
http://www.alanarnette.com/blog/2011/03/18/why-i-am-climbing-everest/
Wednesday, May 18, 2011
'Penny Wise, Pound Foolish'
'Penny Wise, Pound Foolish'
"Out of each dollar appropriated to the National Institute of Health (NIH), only 3.6 cents goes toward supporting the work of the National Institute on Aging (NIA), one of the 27 institutes and centers of the NIH and the lead institute on Alzheimer's disease research..."
Thanks to Bob over at Alzheimer's Reading Room for keeping us all informed so we can help spread the word about Alzheimer's Disease and the multitude of it's impact on our country.
Tuesday, May 17, 2011
Freshman GOP Rep Loudly Booed As She Laughably Compares Ryan's Medicare Plan to Coverage Congressional Members Receive | Crooks and Liars
Freshman GOP Rep Loudly Booed As She Laughably Compares Ryan's Medicare Plan to Coverage Congressional Members Receive | Crooks and Liars
Alzheimer's patients, their family members and caregivers need to find out where their elected officials stand on gutting or cutting Medicare and Social Security. Medicare and Social Security are not entitlements. We pay for them over the course of many years and thousands of dollars in payroll deductions. Only support elected officials who take a stand to not mess with our Medicare and Social Security.
Monday, May 16, 2011
Chip Gerber
I found myself thinking about Chip Gerber on and off throughout the day today. But I couldn't remember that his name was Chip. I remembered how I loved to read his blog, especially about
how he looked forward to his trips to Mexico. But I couldn't remember his name to find his blog.
This afternoon when I did a google search I found Chip's blog. But it only went through part of 2007. Further searching took me to the Alzheimer's Discussion Board where I found he had passed away in 2009. I will miss Chip. He was a nice guy and a fighter for Alzheimer's and Lewy
Body Disease. He was an activist and a neat person. I feel sad right now.
Test For Alzheimer's Helps Diagnose Earlier
(Medical Xpress) -- A new study has revealed the possibility of using a simple test for the early detection of Alzheimer’s disease, enabling the condition to be identified before significant and irreversible decline takes place.
Sunday, May 15, 2011
Wednesday, May 11, 2011
The Paul Ryan Watch: A modest proposal to fix Ryan's plan
This won't go over well with American seniors. Besides that, it's a horrible idea.
The Paul Ryan Watch: A modest proposal to fix Ryan's plan: "Marc Pascal, writing for a blog ironically called The Moderate Voice, says Paul Ryan is loopy for proposing a Medicare voucher plan (a term..."
Saturday, May 07, 2011
THe Friend's Club
Bob over at Alzheimer's Reading Room posted a link to the Friend's Club. It's a group of men who
gather 4 days a week to learn, share, socialize and have important intellectual stimulation. I got all excited when I first went to the website, then learned that it's in Bethesda, MD. Anyway it's a neat site and a wonderful resource for men with early and moderate stage Alzheimer's disease.
http://www.friendsclubbethesda.org/
Palm Beach Educational Conference
The conference was great. I learned a lot. A lot of information was provided about what is coming
down the pike in Alzheimer's research. I was disappointed that I didn't get to meet anybody else
with Early Onset Alzheimer's Disease.
Sunday, April 17, 2011
It's Been A Long Time
I thought I try to make an effort to blog again after a long hiatus.
My condition has not deteriorated at all. In fact, I'm doing quite well except for feeling fatiged a lot at work and had to make a change in techniques of remembering things at work due to the fact that I no longer have a private office. And I have a problem with anxiety for which I take 4 different meds to help me get through the day at work. I don't think I will be working much longer.
For that last 18 months I have been receiving infusions as a part of study for people with early stage who are positive for the APOE 4 gene. I'm still on the Exelon patch.
That's all for today.
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